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Cannot be cure?

Colleen · 3 answers
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What are the symptoms?

Vicky · 1 answer
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What is it

A MyAtaxiaTeam Visitor · 1 answer
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Have you any advice on cerebella ataxia

Judy5 · 1 answer
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6 questions

Colleen asked a question 💭
International Ataxia Awareness Day: 7 Ways To Get Involved Read Article...
Colleen

What is Weakness Ataxia?

What is Weakness Ataxia?

September 27
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Judy5 asked a question 💭
Loss of Sensation in Ataxia: How Nerve Damage Affects Your Body Read Article...
MyAtaxiaTeam

Cerebellar ataxia affects the cerebellum — the part of the brain that controls movement and coordination. Managing it well involves a combination of therapies and lifestyle adjustments.

Here are some… read more

Cerebellar ataxia affects the cerebellum — the part of the brain that controls movement and coordination. Managing it well involves a combination of therapies and lifestyle adjustments.

Here are some key areas to focus on:

Physical Therapy
- Work with a physical therapist to build a personalized exercise and balance program
- Staying consistent with home exercises can make a real difference in walking and movement

Know Your Warning Signs
Seek urgent medical attention if you suddenly experience:
- Numbness or weakness on one side of the body
- Sudden loss of balance or dizziness
- Vision problems
- Severe headache
- Difficulty speaking or swallowing

Diet Considerations
- If gluten ataxia is a factor, a strict gluten-free diet can help stabilize symptoms within about a year
- Ensuring adequate vitamin B12 through diet or supplements supports healthy nerve function It's also worth knowing that the right treatment really depends on what's causing your ataxia. Talking openly with your neurology team about any new or worsening symptoms is one of the most important things you can do to protect your quality of life.

September 4
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Vicky asked a question 💭
Friedreich Ataxia Inheritance and Genetics: What Families Should Know Read Article...
MyAtaxiaTeam

Ataxia can affect many parts of the body, and symptoms can vary from person to person. Here's an overview of the most common ones:

Movement & Coordination
- Frequent falls or stumbling
- Changes in… read more

Ataxia can affect many parts of the body, and symptoms can vary from person to person. Here's an overview of the most common ones:

Movement & Coordination
- Frequent falls or stumbling
- Changes in the way you walk
- Loss of muscle control in the arms or legs
- Trouble with fine motor skills (like small hand movements)

Speech & Swallowing
- Slurred or slow speech
- Difficulty chewing or swallowing food properly
- Food or liquid entering the airway

Heart-Related
- Fatigue or extreme tiredness
- Shortness of breath
- Chest pain or palpitations
- Lightheadedness or fainting

Sensory Changes
- Vision problems or abnormal eye movements
- Hearing or sound processing difficulties

Other Symptoms
- Scoliosis (curved spine)
- Bladder problems, including sudden urges to urinate or loss of bladder control
- Depression
- Digestive issues Symptoms often begin before age 25 and tend to get worse over time. Not everyone will experience all of these, and severity can differ greatly between individuals. It's always a good idea to flag any new or worsening symptoms to your doctor so they can adjust your care plan accordingly.

August 5
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MyAtaxiaTeam

There don't appear to be any links specifically for Epilepsy or Covid available here.

The focus of this space is on supporting people living with Ataxia, so the resources and links available are… read more

There don't appear to be any links specifically for Epilepsy or Covid available here.

The focus of this space is on supporting people living with Ataxia, so the resources and links available are centered around that. If you have questions or concerns related to your Ataxia, feel free to ask!

June 23
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Wyllene asked a question 💭
Friedreich Ataxia Inheritance and Genetics: What Families Should Know Read Article...
Wyllene

My mom's family dad had this, along with 2 girls from a previous marriage

My mom's family dad had this, along with 2 girls from a previous marriage

May 17
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A MyAtaxiaTeam Visitor asked a question 💭
MyAtaxiaTeam

It looks like the question might be a little incomplete — "What is it?" could mean a lot of things! Could you share a bit more about what you'd like to know?

For example, are you asking about:

-… read more

It looks like the question might be a little incomplete — "What is it?" could mean a lot of things! Could you share a bit more about what you'd like to know?

For example, are you asking about:

- What Ataxia is?
- What a specific symptom means?
- What a treatment or medication does?
- Something else entirely?

Feel free to share more details and a helpful answer will follow! 😊

May 9
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